Time to heal

It's been a good long weekend. We went to our convention in Rochester.  My eye behaved. My left side head ache was better but the actual spot where the occipital bone meets the neck smarts like you know what.
I can't believe how long it took me to recover from this surgery. Not just physical pain but I think I learned more about myself mentally this time than physically.  I know that sounds strange but It took me this what 8 or 9 months to untangle from the past 10 years of eye trauma.  Which I didn't even know what trauma til this year.
At the time of the writing of this post I am more than extremely tired and have a week ahead of me unlike most.  But The past month or so I've been thinking how I've come to peace with Egbert and the past - I'm not as worried about the future of my eyes and if they'll need surgery. I just so clearly remember the day after surgery telling Holmes, " Yea, we're going to try to do this in a week because I have things to do, like take care of my friend with pancreatic cancer,"  HA!  9 mo. later!  I'm still 'healing' And still taking care of my friend, who by the way is entering what I call the tail spill.  Let's just see how well the pain stays away with the amount of fatique I think we're about to experience seeing Nancy through to the end.
For now though I see the light at the end of the eye tunnel. And the light is not a train.  Maybe I'll still have my pain episodes but whatever, I can deal with that.

As rough as yesterday was...

Today is much better.  My 6 day headache has been broken! Yippy Skippy.  It's still sore but we're headed the right direction.
My nerve pain on the right side that was so bad yesterday is, at the moment, gone.  Even last night when I went to bed I took two ibuprofen wondering if I should take another dilaudid, as I was in pain, but I chose not to.  That was the point of the ONE dilaudid I took earlier.  My hope was to hit the pain hard and break the cycle.  I think it's working.  We'll see though.  IT likes to hit with out a lot of warning.
But whew! Glad that passed.

8/4/10 - Shouldn't speak so soon.  The left Occiptal headache is back.  Man! I only got one day off.  Besides the pain I just wonder, "is my head tilting again?"  This is my old head tilt head ache.  I don't need this back. This is like old times.  The kicker is also how much time and money I throw at the pain and still it lingers. I'm a little frustrated.  But it's still better than nerve pain.

Come on Comet!

So I went to see Jeremy today he helped the pain on the left side of my head but as he was working about 45 min into my massage, he had my head turned to the right for a long time and then all of the sudden the nerve pain started on the right. It took about one minute for it to fully develop.  This one was bad. Worst one since April.Probably an 7.5 on the pain scale. I felt sick to my stomach, felt like crying,  almost immediately.  Jeremy could tell the pain shifted. Pretty interesting with out me telling him cuz I didn't want to hurt his feelings like he caused it. This was a bat to the head.

I got a pedicure after my massage. The head ache wained a bit then surged.  I went to the chiropractor after that and had him work on it. That helped while the needles were in but pain was very bad on the drive home.  So I went home and took a dilaudid.  Pain subsided mostly for a a couple hours but this warm fuzzy pain is still there.  

I don't really understand, I'm not sure if it's TN or just freak of nature stuff. Thank Goodness for Dilaudid. I don't itch from it either.

Day 5

This morning marks the beginning of yet another day with this headache.  I don't think it's my TN.  I think it's my occipital plate ( This is what I call it anyway)  I need to go see if the chiro can get it back in again tomorrow.  I'm also going to get a massage tomorrow.
This is the kind of head aches I used to have all the time before eye surgery. So I'm paranoid if I'm tilting again.  But someone took my photo yesterday and it didn't jump out at me that my head was tilted. So that's good.