Oculocardiac reflex

I should not be blogging right now! I have 8 million things that need to be done TONIGHT.  But knowing me...
I checked the dumb blogs audience and search words that people use when they come across the blog.  Someone searched "bad pain after strabismus surgery"  it got me thinking...
I never searched the WWW to see if anyone else had trigeminal pain after this surgery. So I typed in "strabismus trigeminal nerve"  I again got pointed to this book co written by David Coates from TX. ( I recognize his name as I remember papers written by him and my dr. jointly- so I figure they're buddies - so his book caught my attention a few times this past year ) anyway, chpt. 6 is on Oculocardiac reflex.
I think I may be on to something here.  It would explain why my heart during surgery was bradycardia then shot up to tachycardia.  It also affects the trigeminal nerve which led to the vagus nerve which leads to the whole parasympathetic part of your whole heart beating thing.  I think the nerve got hurt during this. No fault of anyone. The article said things can be done perfectly but it (the reflex - not trigeminal nerve damage) still can happen.  It kinda makes sense.  I learned alot.  I'm kind of excited.  So far it's the most logical thing I heard or in my case, read, yet.  Cool huh?  Now I dont' have to worry about future surgeries and my heart going all brady again as it was an eye pressure thing.
http://books.google.com/books?id=4oqo-LMSV_kC&pg=PA81&lpg=PA81&dq=strabismus+trigeminal+nerve+pain&source=bl&ots=5AGbyceDpg&sig=ow8oGP8KJiRmcw0qBjb5Z1NL7dQ&hl=en&ei=tDffTNHHOIGnnwfcoLXdDw&sa=X&oi=book_result&ct=result&resnum=7&ved=0CEUQ6AEwBg#v=onepage&q=strabismus%20trigeminal%20nerve%20pain&f=false

8/25/11 - editing this post much later :  wanted to post that after this I later developed a rare heart arythmmia called idiopathic fascicular ventricular tachycardia.  I think I had been showing signs of it all along.  So the reflex scene in my strabismus surgery was no surprise looking back.  I now to this day have bouts of tachy vs. brady every day.  It's just the way I am.  Idiopathic, comorbity Me.

No pain just vein Early signs of Loeys Dietz iv

It's not a stick, it's my arm

I think I had NO pain at all in my eye today. First time in a month I think.  However, my vessels in my arm were so scary today.  I did call Dr. G again -this morning, no re call yet. Maybe tomorrow.  I even took a photo of it.  Looks like 3 peas in my arm vein.

Dr. G. called back late this afternoon (Thurs.)  All she knew was this is not classic connective tissue disorder. It would be something else.  She said I could talk to someone in vascular medicine. But I should not worry about it.  Easier said than done.

11.29.2020. Almost 10 years to the week. I got a diagnosis. Of what was going on here in this picture.  This moment, never left me. I never could forget this . It was so startling to see this happen in my arm. When earlier it also happened in my forhead. I remember telling my doctor,”  what if this bursts in my forehead? “ he said, “well. It would just be a bruise.” I said “but just on the other side of the bone it would be a stroke”

I finally had had it, after a series of frustrating events this spring and summer. I finally insisted , I have to have a genetics test. I wanted Mayo. But the short of the long , with one little blood draw... I have Loeys Dietz type four. You can not believe the relief . I’m not crazy ! My family... finally had an answer ! Why we have had so many severe near fatal bleeding issues. My aortic dissection! My grandmothers Neely bleeding to death , my aunts not clotting after open heart. Anyway the relief turned to reality  One  week later and I had my first full body arterial scan. They found a small inner carotid artery aneurysm. It’s small. I’m waiting for another doctor appt now. But I have my answer. This really was and is and always has been happening. My atrial septal defect ... the constant finger, toes and other vessel ruptures. Even the weakness making strabismus in my long list of problems. Loeys Dietz type four. Explains it all. My blood work answered the mystery. 

3/12/21... this we learned after three mris and Mras. Is manifestation of fibrous muscular dysplasia . They found it on the inside of me too. Over a decade to figure it out. But this moment in time..l never forgot. I knew you couldn’t make this stuff up. Now I have my answers 

A Great Dream

I awoke at 5:30 this morning with a huge smile.  HUGE.  For some reason, I was having this very intense dream that  Jim, Dr. H some other Dr. (who I've never seen in real life), a nine yr old boy (who I've never seen in real life) and my self went to see Dr. Egghead.
There he was sitting across from us and I was sitting all slid down in my chair wondering 'WHAT AM I DOING HERE?"  what do you want me to say?  I have nothing to say to him.
Egghead was being nice and sweet to the 9 yr old boy and then he made a sarcastic remark to Jim about his jeans. In my dream, Jim had these awful ripped up jeans on!  And I was so embarrassed by that.  But anyway...
So there we were, There was an uncomfortable pause,  Dr. H finally spoke up because I wasn't!  He was quite stern and started in on Egghead.  Then all of the sudden I grew a back bone and started in and Dr. H sat back and let me speak my mind. I was controlled, mind you.  Asking questions, rhetorical questions.  The part I remember clearly was when I emphatically stated, "I don't care how stinking good you think you are at your job, you can always learn more! Always!  You are never done learning!"  then I grabbed his pudgy little chin and kinda shook it and said, "I'm just so glad I had Holmes to clean up after your mess!!"  
And that's when I woke up.  Smiling.  This was a nice change from all the dreams I had waking up crying and mad.  Now I woke up smiling and happy.  It only took me a year. :)

A breather

As I drove to work I stopped at the bank and as I sat waiting for the teller to process my deposit I realized I feel GREAT!  NO pain. I had like a whole 24 hours with out distracting pain.  I had one little 30 sec. stab. but that doesn't' count cuz it was 30 seconds! I couldn't wait to get to work and start in on my little faces in wait.
I realize that I am quite invincible when I don't have pain.  I am excited and I have a lot to bring to the table.  That's why I can't live with this nerve pain anymore.  It's sucking the life out of my life.  I love it when I have these windows. It tells me why the pain is so frustrating, it's because life with no pain is so great! I just wish it would last.  This last two weeks was rough, pain wise.  I did have about 3 hours of eye pain today but it wasn't bad enough to even take ibuprofen plus I was busy and didn't have time to take something.   It's been gone now for several hours and I just feel great.  It was a nice relief today not to have it.  A breath of fresh air. I'm just going to enjoy it because you never know what the next minute will bring.