I see my last post was 4-29-2017. It’s now sept 3rd 2018...
Suddenly...the migraines seem to have returned with a vengeance. It’s heart breaking...I tell myself, this has to just be a blip. Just a really bad perfect storm leading to probably the worst migraines I’ve ever had. Well truth be told, I’ve only had two serious migraines since August 19th.
Migraine #1 though was nine days of sheer horror in my view. I did EVERYTHING for it and nothing worked. I have all the meds to stop this...they failed . Chiropractic failed. Hot baths, essential oils... etc My doctor gave me my migraine cocktail of shots... didn’t even phase it on day four. The night of day four my husband took me to the ER I was beyond exhausted, beyond nauseous. I learned about a thing that happens sometimes w compazine : akathesisa = very bad. Panic attack ensued then a crash Got home from the hospital at 2:30am only to wake at 7:30a with the migraine atill there. And have to pace and pace and pace the house because of the compazine still acting... all the while I want to still throw up , still in pain, still sensitive to sound. Last Monday, day 9, I had a scheduled visit w my neurologist in Minneapolis. I had no one to drive me the 1.25 hours there. The dr gave me a series of nerve blocks and trigger injections...I felt weird now on top of sick from my HA...with no warning I proceed go have another exhausting panic attack right in front of the poor neurologist...I realized I can’t drive home. This caused the panic attack...the poor dr allowed me to sleep in an empty exam room til I felt strong enough to drive home.
Finally, the 10th day. It broke. And it was like being let out of prison...now though I was almost pre migraine again. Sometimes before a really massive migraine I get a sense of euphoria. I love this phase even though I know what is likely coming. A migraine. But I live In the moment. I GET THINGS DONE! I was amazing , I got so much done I was almost manic. No, I was manic. I was an amazing machine. But you can only do that so long.
Well I hadn’t really been able to eat much w the 9 days of hell. I could drink cold water w peppermint. Well, I got my electrolytes out of balance and Wednesday one week post ER trip...I could not for the life of me get up. I tried to get up at my normal time of 7:30a or so only to have to quickly get to the toilet because I was going to faint. I made it back to bed . Fell back to sleep immediately. I laid there and had to tell my arm, lift your arm, come on you can do it . I had to see what time it is. It was 9:15am. I never ever sleep that late mid week. I have to work in the afternoon. Okay, no big deal... finally I got up and made it to the kitchen bar stool where I sat wanting the energy to make coffee. Oh my good ness... it was like my limbs were filled w lead. My pulse moving around according to my watch was 53. I see on my trackermy pulse in bed was 42. No wonder I couldn’t move. My limbs don’t move and my eyes don’t stay open when I’m in the low 40’s. I finally realized. Oh, I’m completely dehydrated from all the zofran , opiates, and other drugs. Anyway , it took all day to recover and then Thursday my primary gave me an injection in my trochela of prolotherapy. Friday was good. Saturday was pretty good but terrible anxiety attacks. But I had a true break. I did have little hints of possible headaches flaring.. but no true ha
Then today...I was feeling good, I was at the Kingdom Hall for our Normal Sunday meeting talking and having fun when the ice pick hit the back left occipital bone. Wow! Okay no missing that , but then it faded. Kinda like if you can imagine being hit in the back of the head w a baseball bat and the pain that lingers after. It was okay, I took my Tylenol 3 during the mtg. But then afterwards...about 2 hours later. BOOM! It hit again hard! So hard and was gettiagron atronger.
But now I had a friends five yr old w me. We were home alone. Imitrex failed. Zofran helped. But horrid ha , I was shaky and sweaty... we have five friends that live on my block alone. My friend Norah (age 5)and I went to bring cookies to one couple down the street. They weren’t home, no one was home on our street that we knew. Norah wanted me to pull her in the wagon. I did. It’s along story but I was actually really afraid. Afraid what if I end up laying on a lawn or layi
ng on my floor like I have in times past , I end up in tears and practically paralyzed. What if I need help and I scare my Norah bug? So I decided to test her problem solving abilities. She’s smart. Very smart.
Since non of our friends were home at all. I asked her, “what would you do, if I was sick and needed another adult to help me?”
“Call 911”
“ how do you find my cell phone and unlock the code then figure out where the phone is on the cell phone? “
Well that’s was a true problem so we moved on to finding any adult in the neighborhood. She did good. We also stopped by and talked to my next door neighbor Jennifer who Is a nurse. And I told Jennifer what were discussing. It was a good dialogue to have.
We get home and Norah comes upstairs and says “what about Jims phone on his desk.?”
Oh dah! I forgot we have a land line. Yes, you don’t need a cellphone. So I said let’s go practice dialing the phone. And we did. But instead of calling 911 we called jims phone number.
I think I’m safe w my miss Norah bug. She’s pretty smart. But still, I don’t like thinking about stuff like that.
Tonight, the HA also, totally blew off imitrex. And muscle relaxers. It’s muted by my big guns.
I just can not go back to living how I used to. I just can’t live like that. It was so inhumane.
This has to just be a blip. Really bad blip.
Then 9-4-18: worst ha of my life... no meds worked. Went to the dr, they gave my trigger point injections and it went from bad to worse. A 8/10 to an excruciating 11/10 . If I has a weapon I wanted to just shoot myself in the face. Finally I threw up. This is my oldest form of migraine back to my childhood. It is a classic migraine symptom only now my prodrome is my hands shake and I feel shaky in general for the day prior, . Finally at 9:15pm suddenly something worked! I could actually get up and eat some toast and take in some fluids. Woke the next day w a 5/10 but got it under control w meds. Now I’m scared of this being ynew
Suddenly...the migraines seem to have returned with a vengeance. It’s heart breaking...I tell myself, this has to just be a blip. Just a really bad perfect storm leading to probably the worst migraines I’ve ever had. Well truth be told, I’ve only had two serious migraines since August 19th.
Migraine #1 though was nine days of sheer horror in my view. I did EVERYTHING for it and nothing worked. I have all the meds to stop this...they failed . Chiropractic failed. Hot baths, essential oils... etc My doctor gave me my migraine cocktail of shots... didn’t even phase it on day four. The night of day four my husband took me to the ER I was beyond exhausted, beyond nauseous. I learned about a thing that happens sometimes w compazine : akathesisa = very bad. Panic attack ensued then a crash Got home from the hospital at 2:30am only to wake at 7:30a with the migraine atill there. And have to pace and pace and pace the house because of the compazine still acting... all the while I want to still throw up , still in pain, still sensitive to sound. Last Monday, day 9, I had a scheduled visit w my neurologist in Minneapolis. I had no one to drive me the 1.25 hours there. The dr gave me a series of nerve blocks and trigger injections...I felt weird now on top of sick from my HA...with no warning I proceed go have another exhausting panic attack right in front of the poor neurologist...I realized I can’t drive home. This caused the panic attack...the poor dr allowed me to sleep in an empty exam room til I felt strong enough to drive home.
Finally, the 10th day. It broke. And it was like being let out of prison...now though I was almost pre migraine again. Sometimes before a really massive migraine I get a sense of euphoria. I love this phase even though I know what is likely coming. A migraine. But I live In the moment. I GET THINGS DONE! I was amazing , I got so much done I was almost manic. No, I was manic. I was an amazing machine. But you can only do that so long.
Well I hadn’t really been able to eat much w the 9 days of hell. I could drink cold water w peppermint. Well, I got my electrolytes out of balance and Wednesday one week post ER trip...I could not for the life of me get up. I tried to get up at my normal time of 7:30a or so only to have to quickly get to the toilet because I was going to faint. I made it back to bed . Fell back to sleep immediately. I laid there and had to tell my arm, lift your arm, come on you can do it . I had to see what time it is. It was 9:15am. I never ever sleep that late mid week. I have to work in the afternoon. Okay, no big deal... finally I got up and made it to the kitchen bar stool where I sat wanting the energy to make coffee. Oh my good ness... it was like my limbs were filled w lead. My pulse moving around according to my watch was 53. I see on my trackermy pulse in bed was 42. No wonder I couldn’t move. My limbs don’t move and my eyes don’t stay open when I’m in the low 40’s. I finally realized. Oh, I’m completely dehydrated from all the zofran , opiates, and other drugs. Anyway , it took all day to recover and then Thursday my primary gave me an injection in my trochela of prolotherapy. Friday was good. Saturday was pretty good but terrible anxiety attacks. But I had a true break. I did have little hints of possible headaches flaring.. but no true ha
Then today...I was feeling good, I was at the Kingdom Hall for our Normal Sunday meeting talking and having fun when the ice pick hit the back left occipital bone. Wow! Okay no missing that , but then it faded. Kinda like if you can imagine being hit in the back of the head w a baseball bat and the pain that lingers after. It was okay, I took my Tylenol 3 during the mtg. But then afterwards...about 2 hours later. BOOM! It hit again hard! So hard and was gettiagron atronger.
But now I had a friends five yr old w me. We were home alone. Imitrex failed. Zofran helped. But horrid ha , I was shaky and sweaty... we have five friends that live on my block alone. My friend Norah (age 5)and I went to bring cookies to one couple down the street. They weren’t home, no one was home on our street that we knew. Norah wanted me to pull her in the wagon. I did. It’s along story but I was actually really afraid. Afraid what if I end up laying on a lawn or layi
ng on my floor like I have in times past , I end up in tears and practically paralyzed. What if I need help and I scare my Norah bug? So I decided to test her problem solving abilities. She’s smart. Very smart.
Since non of our friends were home at all. I asked her, “what would you do, if I was sick and needed another adult to help me?”
“Call 911”
“ how do you find my cell phone and unlock the code then figure out where the phone is on the cell phone? “
Well that’s was a true problem so we moved on to finding any adult in the neighborhood. She did good. We also stopped by and talked to my next door neighbor Jennifer who Is a nurse. And I told Jennifer what were discussing. It was a good dialogue to have.
We get home and Norah comes upstairs and says “what about Jims phone on his desk.?”
Oh dah! I forgot we have a land line. Yes, you don’t need a cellphone. So I said let’s go practice dialing the phone. And we did. But instead of calling 911 we called jims phone number.
I think I’m safe w my miss Norah bug. She’s pretty smart. But still, I don’t like thinking about stuff like that.
Tonight, the HA also, totally blew off imitrex. And muscle relaxers. It’s muted by my big guns.
I just can not go back to living how I used to. I just can’t live like that. It was so inhumane.
This has to just be a blip. Really bad blip.
Then 9-4-18: worst ha of my life... no meds worked. Went to the dr, they gave my trigger point injections and it went from bad to worse. A 8/10 to an excruciating 11/10 . If I has a weapon I wanted to just shoot myself in the face. Finally I threw up. This is my oldest form of migraine back to my childhood. It is a classic migraine symptom only now my prodrome is my hands shake and I feel shaky in general for the day prior, . Finally at 9:15pm suddenly something worked! I could actually get up and eat some toast and take in some fluids. Woke the next day w a 5/10 but got it under control w meds. Now I’m scared of this being ynew
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