Five years ago when mayos ENT doctor told me they found I have a very deviated septum and a nasal spur I didn't see how that was connected to the eye pain .
He gave me a 50/50 chance of it helping my eye pain. At the time, 50/50 didn't sound like good odds.
Now, after ten steriod injections, numerous drugs and their side effects, all sorts of 'alternative treatments'. I even allowed my primary to try an idea that has never been tried. Prolotherapy to the trochlea. I think it may have helped but one I find myself back to this subject. 50/50 is sounding pretty darn good.
See, I started a support group quite some time ago on Facebook called 'eye pain sufferers' it's a private group, you can't find it unless you're invited. But one woman came into the group about 8 months ago and her daughter was diagnosised with trochleitis. One night in her local ER an intern saw her daughters scan results and reported on something called a 'contact point headache' where the nasal spur impacts in the sinus and causes this rare form of headache.
Her daughter ended up having this surgery that I'm going to have May 3rd hers was an instant success and 100% cure.
I have to try it. I can't allow any other radical experimental treatments until I try this one. The new ENT I'm seeing at mayo says what I have is "impressive" I laughed when he kept referring to my deviated septum as impressive and my nasal spur as "impressive." I told him, "I don't think that word means what you think it means". (To quote the Princess Bride. ) anyway, I digress.
I'm scared. Scared not of the pain my nose is going to be in, but the pain that it can trigger in my trochlea. And the migraines that could follow. I'm afraid no pain meds will touch the pain surgery to this area could cause.
I'm guessing I won't know for a few months if it so help the pain. Scared silly.