Changing of the Blog

It seems like the blog has changed from Strabismus to a blow by blow on nerve pain. That's mostly because it wasn't until the past 3 wks or so I realize that the pain is a problem that has risen beyond simply strabismus surgery.  Surgery  no doubt stirred the problem.  But than it turned into a whole inflamed nerve. I wonder if the original pain was from surgery or from the trigeminal hurting this whole time. It sure would explain why the pain meds weren't very effective, and maybe why the left eye got in on it. Although I still can't believe that whole left eye thing.  That was RIDICULOUS!  Halstrom mentioned too it could be left overs from when I had shingles. Which is possible but I didn't have shingles on my face.  I obviously have nerve problems that's how I got the strabismus in the first place. It's the 4th cranial nerve.  So why not the 5th nerve, the trigeminal?  Also, my heart is almost always out of rhythm now, that's a nerve problem too I think.
I started my no sugar no grains thing again today, so hopefully that will reduce inflammation too. I'm not doing it for my face.  Just want to be healthy, if it helps my facial pain - great.  I hope to post less and less although I think of things that make me want to write.  Like tonight there was a program on tv and something got said that sent me right back to a topic I hate.  I wont' write about it though. Been there, done that.

I'm still so grateful. I still can't believe that second image is gone and my neck doesn't hurt anymore. 

Doc. Apt.

It's been a long day so I'll try to keep it brief.
I had a good visit with Halstrom today. The guy is good.  I had sent a letter priming him with what I wanted to talk about with him and sent my Mayo report with it. He had things highlighted and underlined and took at least a 1/2 hour even though he's busy.  I just wanted to talk to him when I was not under great deres.  For now I'll do what he recommended with supporting the nervous system with different supplements and hope for the best. He said Mayo was number one for Trigeminal neuralgia. That was after he said the one case he recalls was someone he interned with had to retire due to T.N. Lovely!
This week was quite with pain which is so nice.  But the last 3 days I feel it's switching back to the left side.  I've had these dagger in the skull pains right behind the left ear. I had about 5 of those in 20 sec or so intrevals in a 24 hr period, which you can deal with 20 sec. pain.  Then today it's quite strange like I have a zinging buzz in that spot and then my left ear went on mute today for about 30 minutes and I got dizzy for a half a minute.  Now my hearing feels just fine. But the buzzy feeling is there. Doesn't hurt though.  Ah! to be a freak of nature! All I hear now is a gin and tonic calling my name. :) just kidding gotta go run errands first.

Residuals

I got a sweet letter from one of my clients the other day.  Actually I have had almost each of the 5 family members in to see me.  Back in the 3 weeks of heaven  I wrote a note to any one I ever had a positive thought about and I must have written to this family.  They were gone for a long time to Chile and just returned and got the note I sent months ago, so she just read what I wrote.
I have no idea who I all sent cards to and what I all said. But every once in a while I get these comments or a note in the mail explaining how they loved what I wrote to them.  Frankly, I have no clue what I wrote but I know that I really meant every word in that moment.  So the 3 Weeks of heaven have this residual effect that bounces back like a boomerang once in a while.  It's a good thing.
Not too much pain the last day or so.  I discovered gin and tonics are a great pain reliever.  But can't always take that for pain especially while driving :)
I was driving a long distance Saturday and Sunday this weekend and I know my head is straight while driving. That is pretty cool to me.  Sometimes I wonder if I'm back to tilting and sometimes I do see double especially when laying down but when seeing accurately really matters my eyes work together and they are doing well.
I probably will write after Friday when I see Dr. Halstrom.

3 a.m.

It hit at about 3a.m. Funny how I know it's coming and yet it surprises me every time.  I did all my tricks in the night and woke in no pain. But now it's coming back.  I talk a good talk but when the storm hits it's hard to keep positive.  Pain and I will never be friends. Makes me quite grumpy. Pain is like a room mate. Like a bad room mate. Just have to remember that it won't last forever.
6/17/10
This attack was short lived. What a relief!  Only about 24 hours Maybe a bit longer.  Wasn't too bad.  I'm stll going to go see Dr. Halstrom. Can't hurt might help.
6/18 -it came back during the night.